Diagnosed at 7 with Parry-Romberg syndrome, a rare disorder that causes facial tissue loss, Nebraska native Lukas Caldwell grew up facing stares and cruel comments. With support from his twin brother and family, he found resilience.
By high school, he began sharing his story on TikTok. One viral clip changed everything, and now at 21, Lukas has nearly 3 million followers. Through his posts, he raises awareness, documents his surgeries, and inspires self-acceptance.
His message is clear: embrace differences and lead with kindness.
