In 2017, New York mom Jennie Wilklow gave birth to her daughter, Anna, who was diagnosed with harlequin ichthyosis — a rare genetic condition that causes thick, plate-like skin and can be life-threatening.
Anna’s survival depends on constant care: two long baths a day, layers of ointment, high-calorie meals, and regular therapy sessions. Jennie left her job to care for her full-time and shares their journey on social media, where Anna’s bright spirit inspires thousands.
“She’s always smiling,” Jennie says. “If she doesn’t complain, neither do I.”
